Emma's Foundation - Current Projects

Awareness
Newborn Screening
Emma's Foundation continues to raise awareness through pushing for newborn screening in California. By signing up with Emma's Foundation, you can help the foundation push for screening in Californina. By testing for MLD at birth, many children will be given the opportunity to explore treatment options. It is far too often that MLD is mis-diagnosed (See Emma's Story) or the diagnosis comes too late.

Signup now to assist Emma's Foundation push for newborn screening.

Research
Hope for Demyelinating Diseases through OligodendrocyteTrial Duke University is currently able to manufacture oligodenrocyte cells from a donor or one's blood cells. These cells have the ability to help repair some of the damage caused by MLD. These cells mature into myelin-forming oligondendroglia and may assist in many demyelinating diseases.

The Duke FDA trials are expected to start soon yet. However, money is needed for the first patients to go thorugh the trial. Each child that participates will need $25,000 not covered by insurance. We encourage you to participate in assisting Emma's foundation help this study and FDA trial. Donations will be sent directly to Duke Univeristy.

Signup to stay on top of news related to this project.

COMPLETED STUDIES

Stem Cell Transplant for Inborn Errors of Metabolism

Phase II Study of Allogeneic Bone Marrow or Umbilical Cord Blood Transplantation in Patients With Lysosomal or Peroxisomal Inborn Errors of Metabolism


Awareness Newborn Screening Emma's Foundation continues to raise awareness through pushing for newborn screening in California. By signing up with Emma's Foundation, you can help the foundation push for screening in Californina. By testing for MLD at birth, many children will be given the opportunity to explore treatment options. It is far too often that MLD is mis-diagnosed (See Emma's Story) or the diagnosis comes too late. Signup now to assist Emma's Foundation push for newborn screening. Research Hope for Demyelinating Diseases through OligodendrocyteTrial Duke University is currently able to manufacture oligodenrocyte cells from a donor or one's blood cells. These cells have the ability to help repair some of the damage caused by MLD. These cells mature into myelin-forming oligondendroglia and may assist in many demyelinating diseases. The Duke FDA trials are expected to start soon yet. However, money is needed for the first patients to go thorugh the trial. Each child that participates will need $25,000 not covered by insurance. We encourage you to participate in assisting Emma's foundation help this study and FDA trial. Donations will be sent directly to Duke Univeristy. Signup to stay on top of news related to this project. COMPLETED STUDIES Stem Cell Transplant for Inborn Errors of Metabolism Phase II Study of Allogeneic Bone Marrow or Umbilical Cord Blood Transplantation in Patients With Lysosomal or Peroxisomal Inborn Errors of Metabolism
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