Emma's Foundation - Current Projects

Awareness
Newborn Screening
Emma's Foundation continues to raise awareness through pushing for newborn screening in California. By signing up with Emma's Foundation, you can help the foundation push for screening in Californina. By testing for MLD at birth, many children will be given the opportunity to explore treatment options. It is far too often that MLD is mis-diagnosed (See Emma's Story) or the diagnosis comes too late.

Signup now to assist Emma's Foundation push for newborn screening.

Research
Cell Replacement Therapy Through Stem Cells Duke University is working with growing two particular types of cell called oligodendrocyte and "bright cells". These cells potentially have the ability to stop MLD and repair cell damage. There is much research needed to look into the delivery system and how the immune system reacts to these cells for non-transplanted children. With continued support, Phase I trials could start as early as the end of 2006. This type of cell replacement therapy is very exciting. Donations to Emma's Foundation will go to assisting this project.

Signup to stay on top of news related to this project.

Patients Needed for Clinical Trials

Stem Cell Transplant for Inborn Errors of Metabolism

Phase II Study of Allogeneic Bone Marrow or Umbilical Cord Blood Transplantation in Patients With Lysosomal or Peroxisomal Inborn Errors of Metabolism


Awareness Newborn Screening Emma's Foundation continues to raise awareness through pushing for newborn screening in California. By signing up with Emma's Foundation, you can help the foundation push for screening in Californina. By testing for MLD at birth, many children will be given the opportunity to explore treatment options. It is far too often that MLD is mis-diagnosed (See Emma's Story) or the diagnosis comes too late. Signup now to assist Emma's Foundation push for newborn screening. Research Cell Replacement Therapy Through Stem Cells Duke University is working with growing two particular types of cell called oligodendrocyte and "bright cells". These cells potentially have the ability to stop MLD and repair cell damage. There is much research needed to look into the delivery system and how the immune system reacts to these cells for non-transplanted children. With continued support, Phase I trials could start as early as the end of 2006. This type of cell replacement therapy is very exciting. Donations to Emma's Foundation will go to assisting this project. Signup to stay on top of news related to this project. Patients Needed for Clinical Trials Stem Cell Transplant for Inborn Errors of Metabolism Phase II Study of Allogeneic Bone Marrow or Umbilical Cord Blood Transplantation in Patients With Lysosomal or Peroxisomal Inborn Errors of Metabolism
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