Some Important Links for MLD

The MLD Foundation
A family resource for MLD

The Evanosky Foundation
One of this foundation’s goals is to generate money to fund
research toward curing MLD.

The Stenis Foundation
Raising awareness for MLD

NDRD
The Program for the Study of Neurodevelopment in Rare Disorders (NDRD) is committed to helping children with rare, inherited neurological conditions, and their families through evaluation, education, research, and intervention.

Scientific Meeting on MLD London 2005 Report
The Scientific Meeting on Metachromatic Leukodystrophy was held at the Soho Hotel in London on December 17th, 2005, and was jointly sponsored by the United Leukodystrophy Foundation, the Myelin Project and the Kemp Family. This meeting was a follow-up to the MLD Initiative Meeting in May of 2005 that had been sponsored by the Myelin Project.

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